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Physicians
may make a preliminary diagnosis of Narcolepsy based on a persons
experience of both excessive daytime sleepiness (EDS) and sudden
loss of muscle tone (Cataplexy) - the hallmark symptoms of Narcolepsy.
After an initial diagnosis, physicians will usually refer the
person to a sleep specialist for additional studies and evaluation.
Formal diagnosis may require staying overnight at a sleep centre.
There, electroencephalogram (EEG) electrodes are placed on the
scalp before falling asleep in a comfortable, quiet room. Sleep
technicians in another room monitor brain activity while the patient
is sleeping.
The
next day, the patient will be asked to try and nap several times.
Specialists will observe how quickly sleep occurs and whether
REM sleep occurs. People with Narcolepsy generally fall asleep
in 8 minutes or less; they also enter REM sleep at least 50% of
the time. On average, Narcoleptics enter REM sleep phase 90 minutes
quicker than non-sufferers.
THE
FOUR CLASSIC SYMPTOMS OF NARCOLEPSY - IN A NUTSHELL
1.
Excessive Daytime Sleepiness (EDS) - primary characteristic
is an overwhelmng drowsiness and uncontrollable need to sleep
during the day.
2.
Cataplexy - Cataplexy, the sudden loss of muscle tone,
is the second most common symptom of Narcolepsy. It can cause
physical changes which can range from slurred speech and weakness
of muscles through to total collapse. Attacks can last anything
from a few seconds, to much longer periods. Cataplexy is often
triggered by strong emotional responses.
3.
Sleep Paralysis - Less commonly, people
with Narcolepsy experience a temporary inability to move or speak
while falling asleep or waking. Sleep paralysis is characteristic
of the immobility that often accompanies REM sleep, which experts
believe serves to prevent the body from acting out dream activity.
4.
Hyponagogic Hallucinations - These hallucinations
may take place when people with Narcolepsy fall quickly into REM
sleep. Because they may be semi-awake when they begin dreaming,
they experience dreams as reality.
According
to the National Institutes of Health in the USA, the majority
of people with Narcolepsy experience both EDS and Cataplexy, while
the other two symptoms occur in 25 to 50 percent of affected people.
Other
Narcolepsy symptoms include restless night-time sleep and occasional
automatic behaviour. During episodes of automatic behaviour, the
affected person performs routine tasks without awareness or memory
of doing them.
TIPS
AND TRICKS IN MANAGING THE SYMPTOMS
If
you have Narcolepsy, you may benefit from trying the following
measures if you are able, and your daily circumstances permit
-
Sleep
and wake at the same time every day, including weekends
Schedule
several naps of 10-15 minutes each day
Avoid
caffeine and nicotine
Inform
your employer or teachers about your condition and work to find
ways to accomodate your needs (ie taking naps during the day)
Break
up monotonous tasks
Tape
record meetings or class periods
Stand
during meetings or lectures
Take
brisk walks at various points during the day
NB
- Whilst these measures on managing the symptoms are undoubtedly
beneficial to some sufferers, it must be said that many Narcoleptics
are simply not in a position where they can schedule time to do
these things.
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